Our Vision


Our vision is a world free from the destructive disease of Friedreich’s Ataxia. Our actions aim to serve the needs of the people suffering from it.

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  1. To record and systematically organize all the people suffering from the rare disease.
  2. To back up with every moral, psychological and material way and manner the families of the patients registered in our Association.
  3. To promote the development of scientific research for Friedreich’s Ataxia.
  4. To make the problems that Friedreich’s Ataxia’s patients face, visible to all audiences both nationally and internationally.
  5. To advance measures that the state and society in generally can implement, aiming to provide immediate support of FA patients.
  6. To offer additional propositions and studies to state institutions so that laws affecting Friedreich´s Ataxia patients can be altered, supplemented and amended for the benefit of the above.
  7. To update and help Friedreich’s Ataxia patients participate in any clinical trials that might be conducted relating to their genetic disease.