The Hellenic Association for Friedreich’s Ataxia is a non-profit organization founded in 2020, in the city of Thessaloniki by both parents of patients and patients suffering from this rare, neuroparalyzing disease. It is the first association for this rare neurodegenerative disease in Greece.
Our Association gives a voice to all those suffering from Friedreich’s Ataxia and is a single legal entity, representing their collective will.
The association is run by the five-member Board of Directors, according to all the provisions of the Articles of Association and those of the Greek Civil Code.
The estimated number of FA patients in Greece is one hundred (100) with this
association representing every one of them.
Our goal is to help cure the disease and to ensure equal access of all FA patients to it.
We will achieve this by:
- Showing and sensitizing audiences to the issues and difficulties of people
suffering from Friedreich’s Ataxia at a national and international level.
- Assisting the state’s institutions in the implementation of current scientific methods in the diagnosis, prevention, experimental treatments and treating the symptoms of the disease.
- Aiding and stimulating the timely import of effective treatments for
Friedreich’s Ataxia patients in Greece.
The statute of our association was approved by decision no. 55Σ/2020 of the Single Member Court of First Instance of Thessaloniki and was registered in the Book of Associations of the Court of First Instance of Thessaloniki with number 10661 / 21-05-2020.
You can read in detail the entire statute of our association (in greek) here: