SPONSORSHIP FROM MAVROGENIS SA
Thessaloniki, 18 August 2020
The Board of Directors of the “Hellenic Association for Friedrich Ataxia” expresses its sincere thanks for the very important sponsorship of the company Anastasios Mavrogenis SA. to the Association and the patients suffering from Friedrich Ataxia.
The company Anastasios Mavrogenis SA and Mr. Mavrogenis personally showed a high sense of social contribution as through the funding he offered he covered part of the costs for the employment of a researcher in the Genetics Unit of the Nervous System of the Aeginite Hospital for its implementation.
European monitoring and registration program for patients with Friedrich EFACTS.
The program offers unique services to the Greek patient. Patients are examined annually, where their medical history, clinical findings of a thorough general and neurological clinical examination are recorded and valuable data are collected. In addition, through his participation in the EFACTS program, the Greek patient has the opportunity to participate in clinical trials, which take into account the possibility of a country to have a patient register and data on the natural history of the disease (natural history records).
The kind donation of Mr. Mavrogenis lays the foundations for the continuation of the program for the benefit of Greek patients. The Board of the Association warmly thanks the company and Mr. Mavrogenis and is committed as always operates under the principles of transparency and accountability in its actions, in order to find an effective treatment for the rare disease of Friedreich’s Ataxia.