Welcome to the Hellenic Friedreich's Ataxia Association

As scientific research for treating and curing Friedreich’s Ataxia moves forward quickly, we feel that we are on a critical point- a point where we need to collectively increase and direct our efforts toward making the treatments accessible to Greek patients as soon as they become available.

In this hopeful and auspicious spirit, the Hellenic Friedreich’s Ataxia Association increases its efforts and aims to; incentivize the Greek state and mobilize everyone (person or legal entity) available in order to ensure that every single patient in Greece gets the opportunity to access innovative treatments which will cure this serious genetic disease.

The only way to reach our goal is: working together, in a systematic and organized manner, because we have a mutual, merciless enemy which is, in the interest of keeping our loved ones healthy and safe.

All our efforts are focused on our loved ones who suffer from this genetic disease and their future.

We want you companions on this journey!

Latest News

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COVID-19 and Friedreich’s Ataxia

Last update March 2021

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Mobile application for Friedreich’s Ataxia

Dear Friends,  I am pleased to let you know about a new exciting moment for our community!...

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Letter to FDA & Reata Pharmaceuticals regard Access to Omaveloxolone

A Call to Action was held from January 5, 2021 – January 20, 2021 where the entire...

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HEFAA Annual Report 2020

2020 was a very important year for us, as we have introduced our Association as a...

OUR VALUES

Together for a cure

Vision

The value of life is our ultimate guide in our constant efforts to change the natural course of this disease.

Scientific Research

We believe in both the individual´s and the scientific research´s power. We value the people that choose to be with us and participate in our efforts.

Determination

For a patient with Friedreich’s Ataxia every day counts towards our Association’s fight for our members’ well-being.

Togetherness

Hope strengthens our fight.

”A-taxia means lack of order and coordination”

Patients in Europe

Rare neurodegenerative hereditary disease

For now without a cure

Patients in Greece

Sponsors

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Partnerships

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